Carers
Fri, 26/06/2009 - 11:58am — snails
Hi Everyone,
I just wondered if there are any other carers out there who would like to have a chat.
My partner has had chronic fatigue for over a year now and it has been quite an incredible and difficult journey. We have finally come to some sort of acceptance and although we are not really seeing much improvement, i feel like we are mentally managing it a bit better. So if there is anyone out there in a caring capacity who wants to have a chat (especially if you are new to this whole CFS thing) I think it would be great to create a space for this amd i'm more than happy to share my experience (the anger, frustration, fear, grief, acceptance and all the rest!).
cheers.
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Carer
Hi ,
I know how hard it is to be a carer (especially a loved one)I have been a carer for my son for 28yrs he is profoundly disabled .... it is hard and very isolating and extended family have no idea the daily struggles that you have ..... but I also know what its like to have ME/CFS as I have suffered with it for 14 yrs....... as I was already isolated now it is much worse.....the lack of understanding and the doubts people have about how real this beast is I find to be the hardest thing to deal with my poor husband has had to take on a much bigger load as my ability to do grows smaller...... your partner is very lucky to have you by his side but may I recommend you find time to look after yourself .... its something that I was never able to do and put myself on the bottom of the list of people to look after something that I still struggle to do as females tend to feel guilty when they do and I have actually been called selfish when I have tried .And if you have not already I recommend you join Carers Australia ......I don't know if you have found anything useful in all of this .... I hope you have ....Take care...
Diane