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Carers who have ME/CFS

Fri, 31/10/2008 - 12:41am — Diane

Hi all,
I am a carer of my severely disabled son and have also suffered from ME/CFS for12yrs ......I survive by working my whole life around him..
ie:he goes to a day program ...I go back to bed for more rest/sleep...this time is also used for errands ie:drs/shops that is when up to it...more rest .....homecare come in to do his personal care as that is now well beyond me...that put him to bed...and then hubby home ....evening meal...rest and potter around to keep house in order. But all is worth it as even though he goes throught hell some days he just gives you the biggest smile and all is not so bad . Are there anyother Carers that have ME/CFS out there I would love to hear your stories.... Smiling
Take care......Diane

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Wed, 26/11/2008 - 10:21pm — Diane

Carers with ME/CFS

Hi ,
It just me again ....i was thinking I may had made contact with other people who have ME/CFS that are cares as well by now...... I have people around me that are carers but have normal health......I also have people around me that also have ME/CFS both in person and on line withthis wonderful forum the best form of support do come from you guys on this forum and my very good friend (a Fellow suffer) this support I could not live without as it reduces the sense of isolation that we all feel........But to hear from fellow carers with ME/CFS as well would mean a lot for me for at the moment am feeling very alone in roll.Just would like to know how you manage......hope to hear from someone soon....but have to go now as I am fading fast......Diane

Tue, 02/12/2008 - 3:20pm — adluch

Hi Diane, I'm Rachel. I just

Hi Diane,
I'm Rachel. I just joined the forum, I was diagnosed today as having CFS. I am a single mum of 4 kids, 16 yr, 13yrs,11yrs & 5 yrs.My 13 year old son has autism and a global developmental delay.I will check in as often as I can.
Rach

Tue, 02/12/2008 - 4:09pm — Diane

Carers with ME/CFS

Hi Adluch,
firstly welcome to the forum.........WOW .....how do you do it ...having 4 kids would be hard enough but to have the care of a child with a disability as well .... I take my hat off to you... my son is now 27yrs and has Lennox Gastaut Syndrome but I know somethink about Autism and I have seen how physically demanding it can be on the carer .... in your other post it said you worked part time as well ...SUPER MUM .... comes to mind..... but try to remember YOU in all this ..... I should listen to my own advice easy said but not easy to do.... how long have you had your symptoms ?... Anyway must go...
Take care......Diane

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