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Hi, im new

Fri, 12/09/2008 - 11:57am — suez2

Hi im new, have had fibro for 3 years now. Took two docs and two spec to finally get treated. I am on a combo of meds which I hate. One is Norspan Patch which had for year now, is anyone else on this drug or knows the life span as I am getting breakthrough pain and am terriefied of the pain coming back, I was suicial before that, im hoping it is just a flare. I always feel worthless and afraid. I feel always that I fail the family and dont have anyone to talk to about this. sue2z

‹ Diet Cream of *blah* soups ›
Fri, 12/09/2008 - 2:50pm — Marina

Hi

Suez - you are not alone. I am glad you have found this forum as I just have. It is a good place for us to share our experiences and feelings. We are all so different yet can share together the secret understanding of many things that come with chronic illness.

I don't know anything about the medications that you have mentioned - so I can't offer any advice there - I hope someone else will be able to comment on that for you. In brief, I have been diagnosed with CFS after 3 years of recurrent bouts of unexplained illness. This year has been the toughest so far as I have had to stop work.

All your feelings are legitimate. It is an emotional roller coaster. When you are afraid just sit with it. Accept it. Say to yourself I feel afraid - that's ok. Let it come and go. I know - easier said than done Smiling

Are you seeing a counsellor or psychologist? I find the support and understanding from my psychologist very reassuring. I would recommend it to all. If you are in a financial hardship, as are a lot of us, you can get your GP to refer you to a psychologist under a special medicare rebate scheme where you get 12 subsidised sessions a year.

Anyway, we are here for you.

[[/b]Best wishes,

Marina

Sun, 14/09/2008 - 2:27pm — juz

FIBROMYALGIA

Hi Sue

I have Fibromyalgia too. I hadn't heard of the patches you are on. Have you had a look at Doctor Daniel Lewis's website http://www.pathways2wellbeing.com.au/html/s01_home/home.asp He is a rheumatologist based in Melbourne. I know from experience how frustrating and debilitating our condition can be. Hang in there mate.

Regards
Justine

drugs