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Why do I get the impression they think its all in my head?
Hello to all my fellow sufferers out there,
I just wanted to write this blog as I've had such a hard time finding a doctor willing to help me or point me in the write direction in terms of treatment.
I've been suffering fibromyalgia for a year now and the symptoms are pretty much excruciating in terms of pain and I feel as though the medical world arnt willing to offer me any treatment. After doing my research and hearing about things like Lyrica and Cymbalta which have been approved by the FDA in America, it makes me so annoyed that I cant find a doctor who is famillar with this sort of treatment or wants to even have a discussion with me about it or could even prescribe it for me.
To even be offered some occasional pain relief on my really bad days in the form of pain killers would be of great help. I am currently living in Sydney but am moving down to Wollongong next week. So my question to you all is, do you know of any doctors out there (either in Wollongong or Sydney) that you've found to be of any help to you in terms of either just wanting to provide you some medications that may help or even just an open mind that is willing to listen to your ailments and maybe offer a suggestion? This would be so much appreciated as I am sick of the sickening feeling of feeling 'let down' each time I come out of a new doctors office in the hope that they were going to help me.
Or is anyone out there in Australia on Lyrica or Cymbalta at all or do you know of anyone? I dont even know if they can prescribe it here.
By the way, I was watching Oprah the other day and they happened to be talking about this new doctor thats been helping people cure there fibromyalgia and chronic fatigue. You should check out his website, You can take his online questionare to see what he recommends you could try for treatment for your specific problems. I've ordered some of his supplements. I'll write another post when I get them back and trial them out. You can either google his name- Jacob Teitelbaum, or his website is End Fatigue. com. I just thoughts I'd share this because usually Oprah wont promote something on her show that doesnt have any merrit to it. Good luck everyone with on your path to good health..
Melissa
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Hi Melissa
Hi Melissa,
I don't have FM, so don't really know much about the resources available out there. But you can try ringing the NSW ME/CFS office - they have names for doctors that will be sympathetic to your plight, and hopefully have ideas for new treatments and pain control.
I do know the feeling of being 'let down' by doctors. I have good doctors now, but have gone through the totally exhausting and disappointing crash associated with seeing doctors I hoped would help me only to have my hopes crushed.
I had a look at the site you mentioned, and it certainly sounds interesting. It's great to know what different methods of treatment are around at the moment. It's also very encouraging to see doctors with such passion and commitment to CFS and FM and thier treatment. I suppose the only caution I would give is that this is one possible treatment. There are no known 'cure-alls' for CFS or, as far as I know, for FM. So whilst this doctor's treatment seems to have been very helpful to some, it won't work for everyone.
I suppose the reason I particularly mention this is that I've learnt from the numerous doctors appointments that have dashed my hopes that getting your hopes up for a cure-all can be very hard if they don't work. It's very important to try different treatments, and keep informed, and not give up. But, as you will have found, if you get your hopes up too high you can get really disappointed if they don't. I found what helped me best was to make looking for treatments an exercise, where I was going to be really thorough about finding and trying each treatment, but trying to stay as detached as possible (easier said than done) as to placing all my hope in each treatment.
Having said that, I really hope this treatment works out for you. I'm looking forward to hearing from you again and hearing how you're going with the new tablets.
Amy B
I can relate to the all in your head experience
With my tachycardia being a rare little known one I'm frequently misdiagnosed as having anxiety (which they don't seem to treat to confirm and resolve or deny the condition) and therefore have had problems having anything treated. Therefore I don't mention it simply to get other things attended to.
You may be interested in the link I've posted under Is a Rheumatologist's diagnosis valid enough?
Take care DJ
Amy Like DJ's reply, I
Amy
Like DJ's reply, I suggest you read the "Is a Rheumatologist's diagnosis valid enough". I cannot unfortunately suggest anyone to see, but definitely do not see rheumatologists.
Secondly, a rheumatologist put me on Lyrica. Did absolutely nothing for me except make me extremely tired, dizzy and falling over all the time, resulting in injury.
I know this is not possible because of legal implications, but it is a pitty the ME Society does not keep a list of "unfriendly" doctors, ones to avoid, in addition to their list of helpful GPs. Later this year I will be lobbying to my local member in the hope of trying to stamp out doctors writing people off, particularly on hearing they have had chronic fatigue. All the best in finding a good doctor, I don't believe there is such a thing!
Kathleen
RE:
Hi Melissa,
Just a quick thought, ask your doctor to send you to a pain management specialists, the one I seen was more than willing to offer pain relief, something doctors don't understand but a pain manegment specialists seems to ...
xxx
http://www.undiagnosedillness.org