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Notes on Chronic Fatigue Syndrome Prepared by Raymond E. Zegebroks

Thu, 23/08/2007 - 12:57pm — admin
Mr Zegebroks is the father and carer of his daughter who suffers from ME/CFS and Fibromyalgia. His dedication to trying to find ways of helping his daughter improve and eventually recover from her extremely debilitating condition, has led him over many years to investigate some aspects of biology, microbiology and molecular biology as well as some of the research into ME/CFS, and has resulted in an initial draft of his findings entitled “Notes on Chronic Fatigue Syndrome”.

SEEKING "FEATURED MEMBERS"

Fri, 06/10/2006 - 12:33pm — admin

What is it like to live with ME/CFS? How hard was it to get an accurate diagnosis? When did it start and how has it affected your life? What tips can you offer to others who may be looking for help / hope? These are the kind of stories we are looking to gather to share with other readers.

25th BIRTHDAY CELEBRATION!

Thu, 03/08/2006 - 11:43pm — admin

Come one, come all to the ME/Chronic Fatigue Syndrome Society of NSW Inc.'s 25th Birthday!

October 2006 is our 25th year of operation and we are celebrating! There is something for everyone to get involved in including a party day, an art & crafts competition, a writing competition, and a doctor and patient seminar with respected ME/CFS specialist, Dr Richard Schloeffel.

Get involved! Learn about ME/CFS and ask all those pressing questions! Join in the party fun!

Community Support Forum

Mon, 17/07/2006 - 1:11am — admin

Our Community Support Forum is growing into a wonderful interactive resource for members and the general public alike.

It is designed to provide information and support for those with ME/CFS, FM and other related illnesses, and to provide a friendly and understanding place to chill out for those that like to chat. It even has an area for friends and carers to discuss the day-to-day things and get some helpful advice from others in the same situation.

CLICK HERE TO GO TO THE FORUMS!

Want to send a message to the management committee?

Live Your Life Self Management Course

Wed, 02/06/2010 - 2:58pm — office

A really worthwhile workshop for people with any long-term Chronic Health Condition is being held on the Central Coast by NSW Health Northern Sydney Central Coast. A Self-Management 2-1/2 hour Workshop weekly for 6 weeks to help regain your normal health quickly.

What you will learn is strategies and techniques to help you manage your symptoms and improve your health. This Live Your Life course has achieved outstanding results. Your friend family or carer is most welcome. Pls Call 4328 7340 or 4328 7341 for more information.

National Disability Card

Wed, 05/05/2010 - 9:09am — Therese

We have been advised by National Disability that the NSW Companion Card is only issued to people with significant and permanent life-long disability who are unable to participate without assistance. ME/CFS/FM people are not eligible for the card.

Pacing Means Moving Ahead

Tue, 27/04/2010 - 3:59pm — Therese

Are you moving ahead or falling behind? How to make your ME/CFS/FM pacing more productive. For more information on this please see website by Bruce Campbell Ph.D., Executive Director CFIDS & Fibromyalgia Self-Help Program www.cfidsselfhelp.org.

Whilst on this website read how overlapping and related conditions are often diagnosed with ME/CFS/FM and by treating these you are likely to moderate your CFS and Fibromyalgia symptoms.

Hoyts Cinemas $1 Tickets

Tue, 27/04/2010 - 3:48pm — Therese

Carers NSW have announced that Hoyts Cinemas is offering Carers members $1 tickets to their cinemas (maximum one ticket per day) when accompanied by a person with a disability. Valid until 2011. Phone NSW Carers 9280 4744

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