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Notes on Chronic Fatigue Syndrome Prepared by Raymond E. Zegebroks

Thu, 23/08/2007 - 12:57pm — admin
Mr Zegebroks is the father and carer of his daughter who suffers from ME/CFS and Fibromyalgia. His dedication to trying to find ways of helping his daughter improve and eventually recover from her extremely debilitating condition, has led him over many years to investigate some aspects of biology, microbiology and molecular biology as well as some of the research into ME/CFS, and has resulted in an initial draft of his findings entitled “Notes on Chronic Fatigue Syndrome”.

SEEKING "FEATURED MEMBERS"

Fri, 06/10/2006 - 12:33pm — admin

What is it like to live with ME/CFS? How hard was it to get an accurate diagnosis? When did it start and how has it affected your life? What tips can you offer to others who may be looking for help / hope? These are the kind of stories we are looking to gather to share with other readers.

25th BIRTHDAY CELEBRATION!

Thu, 03/08/2006 - 11:43pm — admin

Come one, come all to the ME/Chronic Fatigue Syndrome Society of NSW Inc.'s 25th Birthday!

October 2006 is our 25th year of operation and we are celebrating! There is something for everyone to get involved in including a party day, an art & crafts competition, a writing competition, and a doctor and patient seminar with respected ME/CFS specialist, Dr Richard Schloeffel.

Get involved! Learn about ME/CFS and ask all those pressing questions! Join in the party fun!

Community Support Forum

Mon, 17/07/2006 - 1:11am — admin

Our Community Support Forum is growing into a wonderful interactive resource for members and the general public alike.

It is designed to provide information and support for those with ME/CFS, FM and other related illnesses, and to provide a friendly and understanding place to chill out for those that like to chat. It even has an area for friends and carers to discuss the day-to-day things and get some helpful advice from others in the same situation.

CLICK HERE TO GO TO THE FORUMS!

Want to send a message to the management committee?

Holidays

Wed, 20/01/2010 - 12:03pm — Therese

"Why should I have a holiday?" Take a break from the responsibility of caring with the person you care for (with someone else doing the caring) or take a break by yourself. By phoning the Commonwealth Carer Respite Centre on 1800 059 059 you will be able to talk about any issues you may have about taking a break and learn how you can make it happen. Smiling

Happy New Year!

Tue, 12/01/2010 - 9:49am — Dan

Dear Members, Friends and Supporters,

We would like to wish everyone a very happy new year and let you know some news from the office...

The office reopened for business yesterday (Monday 11 January), and will be open at the following times during January and February:

9am to 5pm Monday, Tuesday, Wednesday
10am to 6pm Thursday
Closed Friday.

All website registration requests that were made after 19 December have been approved this morning. I apologise for the delay over the break in accepting these. If you registered for a website account but haven't received a confirmation email, please email me at webmaster@me-cfs.org.au to sort it out.

Merry Christmas from the Society!

Fri, 18/12/2009 - 1:50pm — admin

The Society wishes all members a very merry Christmas and a happy, safe new year.

The Society will be closed from 4pm, Friday 18 December 2009. It will reopen at 9am, Monday 11 January 2010.

If you need urgent support during this time call:
Lifeline 13 11 14
Salvo Crisis Line (02) 9331 2000
Telefriend (02) 9419 8622

During January 2010, the office will be open from
9am to 5pm Monday, Tuesday, Wednesday
10am to 6pm Thursday
Closed Friday.

Help direct ME/CFS Australia's future

Wed, 18/11/2009 - 12:10pm — admin

In October 2009, ME/CFS Australia convened a summit in Canberra where it made a number of positive decisions related to its future.

ME/CFS Australia wishes to establish its operations so that it can deliver Nationally-focused programs that will improve the wellbeing of Australians affected by ME/CFS. Before we get ahead of ourselves, we must engage with the Australian ME/CFS Community to test our ideas for support and to assess the feasibility of expansion. We have established a Blog as a means of connecting with everyone with an interest in ME/CFS. http://mecfsaustralia.wordpress.com/

If there are any people in the Australian Capital Territory eager to be involved in Advocacy work, please contact me.
Cheers, Paul Leverenz
ME/CFS Australia
mecfs@mecfs.org.au

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