The ME/CFS Society of NSW Inc.

The Sleepydust ME/CFS video was made for the friends and family of ME/CFS sufferers. Please help to educate people about this illness by forwarding this page on to as many people as you know.

Visit the Sleepydust website: http://www.sleepydust.net/

These radio programs contacted the society after receiving our Awareness Day press release to organise interviews. Make sure you listen in and support the cause!

Today - Monday 12th - National Radio Network (broadcasts to 92 stations) interview with Dr Mark Donohoe sometime after 2.30pm on your local community radio station. In Sydney tune into 2MCR 100.3 or 2SSR 99.7

Tuesday 11th - 103.2 FM Mornings with Joanne Traeger - 10.25am interview with Kerry Hill - The Social Welfare Officer at The ME/CFS Society of NSW.

Chronic fatigue syndrome (CFS) can sometimes lead to an identity crisis so
severe it is akin to dying. That's one message derived from comments made by
fourteen people with the condition who were interviewed in-depth by health
psychologists in Scotland.

CFS, also known as ME (myalgic encephalomyelitis), is a poorly understood
condition characterised by long-term tiredness that persists even after
sleep and rest. The organic cause is unknown.

Using a qualitative technique called interpretative phenomenological
analysis, Adele Dickson and colleagues identified three themes in the

-by Ros Vallings

Scepticism has been a problem for people with ME for a very long time. In this article, Dr Rosamund Vallings takes a look at scepticism and disbelief in ME from a medical practitioner’s point of view.

Volunteering not only provides the Society with valuable skills but allows people who are testing the waters in regard to coping with work an opportunity to become involved. We have several projects that will need volunteers to help us through and if you would like to be involved, we urge you to contact us to discuss where you can be of help.
You can contact the office via our contact page or email mesoc@zip.com.au

Next year we are planning to release an anthology of member's ME/CFS/FM stories .
We hope this will bring us media exposure with the launch of the anthology coinciding with Awareness Week 2009, as well as being an interesting project and an uplifting read for members.

Suggestions for topics include: parenting, friendships - human or furry, school or further study, coping with relapses, favourite outings, travel, exercise and pacing and surviving symptoms/doctors/outings/boredom.