"The original ME/CFS Society of NSW established in 1981" with passion to support people witht his illness. Run completely by volunteers. Commenced without funding and run with dedication.

Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a severe, complex, acquired illness with numerous symptoms related mainly to the dysfunction of the brain, gastro-intestinal, immune, endocrine and cardiac systems. ME has been classified as a neurological disorder in the World Health Organisation's International Classification of Diseases  since 1969 (ICD 10 G93.3).




Dear members, the following very important message about disability pension from the committee . Please read! ----------------->>>Please_read.doc

Dear members, we are working on a journal, there have been budget cuts and we are now staffed by volunteers, we are working towards posting a smaller newsletter to you as quickly as we can.

support group enquiries

Please note that the phone number of  Murwillimbah (Tweed Shire) support group, Fiona Mcinnes, printed on the Society Me & You journal was 07 66791217, should be 02 66791217.

As per usual when you ring the office and ask for information about contacting your closest support group etc please give your details to the staff and they will be able to forward ME/CFS/FM information to you and quickly send your contact details to the closest group so you can be assisted.

May we take this opportunity to wish you all a wonderful year and we look forward to your next call for assistance or just when you need to say hello to someone who understands and cares.

good health & warmest regards

The Management Committee

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Western Sydney

CFS victim locked up after euthanasia attempt

A Perth woman battling chronic fatigue syndrome was committed to the locked ward of Fremantle Hospital after an attempt to euthanise herself in a desperate bid to address her crippling condition.

A Success Story

One sufferer tells her story of how CBT can be used in self-management. New self-management classes begin online on the 21st March.

PACE Trial on ME/CFS

Response from ME/CFS Australia to the UK Medical Research Council PACE trial findings.

Spinal Fluid Proteins

Spinal fluid proteins distinguish Lyme disease from ME/CFS.... both conditions involve the central nervous system and protein abnormalities in the CNS are causes and/or effects of both conditions.

Author Escapes From CFS

Laura Hillenbrand's newest book, “Unbroken: A World War II Story of Survival, Resilience and Redemption,” is a riveting tale of the life of an athlete and war hero. Ms. Hillenbrand’s ability to transport her readers to another time and place is all t…

The Pacific Fatigue Lab

Could a small lab in the Central Valley of California change how CFS is viewed? The lab focuses on a very basic and still very misunderstood aspect of CFS – why patients have so much trouble with exercise.

Acylcarnitine deficiency in CFS

Recent research from the University of South Australia: ... in light of carnitine’s critical role in mitochondrial energy production, it has been suggested that chronic fatigue syndrome may be associated with altered carnitine homeostasis. This study…

Exhausted by Illness, and Doubts

A New York Times report on the XMR virus and CFS. "XMRV was first identified in 2006.... It was linked to chronic fatigue syndrome in October 2009 in a paper in the journal Science by researchers from the Whittemore Peterson Institute....The research…

Australian CFS Symposium Overview

A summary of the presentations at the International Science Symposium on ME/CFS, 3-4 December 2010, Bond University, Queensland, Australia.

Plasma neuropeptide Y

Plasma neuropeptide Y: a biomarker for symptom severity in chronic fatigue syndrome.
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Person with ME/CFS
Person with Fibromyalgia
Carer of someone with ME/CFS or Fibromyalgia
Friend of someone with ME/CFS or Fibromyalgia
Healthcare professional
Just interested



The ME/CFS Society of NSW Inc. is a Registered Charity that aims to provide information and support to all who are affected by Myalgic Encephalomyelitis ("ME") also called Chronic Fatigue Syndrome ("CFS") and any related illnesses, to promote accurate awareness of ME/CFS within medical and scientific communities and the wider public, and to support research into the treatment of ME/CFS.


Please dial 02 before the phone number even if you are calling from NSW

Phone: (02) 80067448

PO Box 5403,
West Chatswood NSW 1515
ABN: 28 688 072 304